About the 'Genetics of Stuttering Study'

Researchers from the NHMRC Centre of Research Excellence in Speech and Language are calling for 3,000 participants aged seven and above with experience of stuttering (past or present) to volunteer for the nation’s largest ever ‘Genetics of Stuttering Study’.

The study aims to pinpoint the genes that predispose individuals to stuttering, which could revolutionise future research into the causes, treatment and prevention.

The study involves 15 key investigators at eight sites in Australia, the UK, the USA and The Netherlands.

The Murdoch Children’s Research Institute, Walter and Eliza Hall Institute of Medical Research, QIMR Berghofer Medical Research Institute, Griffith University and the University of Melbourne are coordinating the Australian arm of this international study.

Volunteers must be:

  • Male or female
  • Aged seven and above
  • Currently stutter or have a history of stuttering.

If you would like to take part, follow the links to the survey below:

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Not based in Australia?

No problem - you are very welcome to sign up to our study; however, depending where you live, we may not be able to collect a saliva sample for genetic analysis just yet. Even if you are not able to provide a saliva sample, the information you provide via the questionnaire will still be valuable to our ongoing work to better understand the experiences of people who stutter.

The Dutch arm of this study is now recruiting participants in the Netherlands and Belgium! Please see http://www.geneticavanstotteren.nl/ for more information.

We will be starting recruitment drives in other countries very soon - watch this space!


Need more information?

Please see our FAQs page, or email geneticsofstuttering@mcri.edu.au.

Participate in our genetics study to help us
better understand stuttering