Ever experienced stuttering?

Help us better understand the causes of stuttering by joining our genetics study today!

To take part, please follow the link below:

The Genetics of Stuttering Study

Find out more about our study, including what we are trying discover, the scientists involved and how you can take part.

About Stuttering

Learn about the signs and symptoms of stuttering, what is known about the causes of this condition and other useful resources.

Current Research

Find out about the latest in cutting edge stuttering research, as well as other new research from our team.

For Researchers

Opportunities for collaboration, and other useful information for researchers involved in stuttering and/or genetics.

News and Blog

Spotlight: Participant Rich talks about his experiences with stuttering

By MCRI | Nov 12, 2019

Rich Stephens talks about his experiences with stuttering, and the power of not feeling alone. He feels strongly that “stuttering should never be a taboo subject”. He believes that “to understand anything you need to start at the beginning. Which is why The Genetics of Stuttering Study is so important for the future generations of people who stutter.”

Genetics of Stuttering Study in the media!

By Vicki Jackson | Aug 19, 2019

What an exciting day we had on Friday! The Genetics of Stuttering team spent the day speaking to the media about the study, and put a call out for anybody who has ever experienced stuttering to volunteer for our study.

New research from the study team: We found a new gene that causes a neurodevelopmental disorder, with speech impairment.

By Vicki Jackson | Aug 7, 2019

“We identified seven affected females in four pedigrees with likely pathogenic variants in ZNF142” – Khan et al. 2019

Contact Us


(+64) 4 918 6166 (NZ)


Genetics of Stuttering Study, Speech and Language Group
Level 5, Murdoch Children’s Research Institute
50 Flemington Road,
Parkville, VIC 3052



Latest tweets

Monday, May 17th, 2021 at 10:14pm
UK-based followers 🇬🇧 - please take the time to look at this survey if you want to share your thoughts about the impact of #COVID19 on people who #stutter!!


#research #stammering https://t.co/ZfnsZ4pMAp
Monday, May 17th, 2021 at 3:23am
💪 https://t.co/RLpF35qmQw
GenStuttering photo
Adam Booth @AdamHudds
Thanks to @stammer for the running vest! I'll be running at least 500 miles between now and the Alcester 10k in October trying to raise as much as possible for such an amazing charity! @Felicity_Baker @R_Signals https://t.co/p10SuGEqNR https://t.co/OelGBMH4pz
Monday, May 17th, 2021 at 3:05am
We are still looking for people who have ever experienced #stuttering to take part in our #research study! 🧬

Please share if you know someone who might want to get involved! 🙏

See our website to find out more: https://t.co/7kcho3tXM0 https://t.co/AtT5dwVIja
GenStuttering photo
Wednesday, May 12th, 2021 at 3:47am
We are still recruiting!

If you have ever experienced #stuttering, and are interested in being involved in stuttering #research, see our website for details about how you can get involved!

https://t.co/7kcho3LzaA https://t.co/VacBR6eKGe
GenStuttering photo

To help us meet our target of 3,000 participants by 31 December 2021, volunteer for our study today

Study goal


study participants
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Participate in our genetics study to help us
better understand stuttering