Help us better understand the causes of stuttering by joining our genetics study today!
To take part, please choose one of the following surveys:
The Murdoch Children’s Research Institute is appealing for volunteers aged 7+ with experience of stuttering (past or present) to participate in the NHMRC Centre of Research Excellence in Speech and Language’s ‘Genetics of Stuttering Study’.
2019 has been a busy year for the Genetics of Stuttering Study! As the year draws to a close, we thought it a good time to provide an update on how the study is progressing, and our plans into the new year.
Rich Stephens talks about his experiences with stuttering, and the power of not feeling alone. He feels strongly that “stuttering should never be a taboo subject”. He believes that “to understand anything you need to start at the beginning. Which is why The Genetics of Stuttering Study is so important for the future generations of people who stutter.”
What an exciting day we had on Friday! The Genetics of Stuttering team spent the day speaking to the media about the study, and put a call out for anybody who has ever experienced stuttering to volunteer for our study.
New interview with Rich Stephens from @sayorg Australia, via @the_informertv. Give it a watch!! 👇👇👇 https://t.co/p274oVsKmb
Fantastic to hear about @JohnGHendy's new book on #stuttering! He is keen to speak with PWS - particularly underrepresented groups. If you have a story to tell - get in touch! https://t.co/SAbKnyKXez
I never really wrote (or even spoke) about my stutter until I interviewed Biden last fall. And I never expected stutterers all over the world to send me letters about their own lifelong struggles with this disorder. I’m deeply humbled and grateful to work with @aaknopf on this: https://t.co/PLZ4SBzuog
Read this fantastic piece by study participant Sian about her experiences of growing up with a #stutter. Sian is such an inspiring young lady, and we are delighted to have her supporting our study!
#research #Inspiration #BeKind
Annie Glenn, as a person who stuttered, was a champion for many in the #stuttering community. Thrown into the public spotlight as the wife of astronaut and senatorJohn Glenn, she used this prominence to advocate for PWS and to change the public perception of stuttering.
About the 'Genetics of Stuttering Study’
The 'Genetics of Stuttering Study’ aims to pinpoint the genes that predispose individuals to stuttering, which could revolutionise future research into the causes, treatment and prevention of the disorder.
Stuttering or stammering affects verbal communication – particularly the rhythm or flow of communication.
Although the exact cause of stuttering is yet to be determined, genetics does play a role in stuttering, and a number of genetic variants having been identified to date.
The study involves 15 investigators at eight sites in Australia, the UK, the USA and The Netherlands.
Study researchers are working to recruit 3,000 volunteers from Australia, aged 7+ with a history of stuttering (past or present).
Please see http://www.geneticavanstotteren.nl/ for more information about recruitment in the Netherlands and Belgium. We will be starting to recruit from other countries very soon - watch this space!
Participating in this study could make a genuine contribution to the understanding of stuttering.
How can you help?
If you currently live with, or have a history of stuttering, we encourage you to volunteer for our groundbreaking research study by completing the 10 minute core component of our online survey. Depending on your responses to our survey, you may be asked to donate a saliva sample.